We know that trying to find words to express yourself can be difficult. This webpage will try to clear up as much as we can. Feel free to ask all your questions to your counselor.
What's the difference between Cassandra Syndrome and Ongoing Traumatic Relationship Syndrome (OTRS)?
These terms are related but have some subtle differences that can be confusing.
Ongoing Traumatic Relationship Syndrome (OTRS) describes the trauma-based symptoms that result when "individuals who undergo chronic, repetitive psychological trauma within the context of an intimate relationship".
This can occur in any relationship whether or not neurodiversity is involved.
Cassandra phenomenon or Cassandra Syndrome refers to the experience of a non-Asperger’s person (allistic) in the relationship when:
that person is experiencing on-going trauma and
is not being believed when they talk with a friend about the problems in the relationship with their autistic partner."
Affective Deprivation Disorder (AfDD) is another name for Cassandra Syndrome. It was first described by Maxine Alston who drew a parallel to Seasonal Affective Disorder (SAD); thus, the impact of emotional deprivation in AfDD is similar to the impact of sunlight deprivation in SAD.
WHAT DOES ALL THIS MEAN?
None of these terms are officially recognized by the American Psychological Association (APA); however, understanding the terms that you are reading about can help remove some of the confusion when trying to clearly describe what your experience is.
WHAT IS NEURODIVERSITY?
Neurodiversity refers to the idea that the human brain can function in a wide range of different ways, and that these variations should be recognized and respected as a natural part of human diversity.
TYPES OF NEURODIVERSITY
The most common conditions people think of as neurodiversity are:
autism (1-2% of the population),
ADHD (4-5% of the population), and
dyslexia (the most common type of neurodiversity).
But it also can include Tourette's, dyspraxia, synesthesia, dyscalculia, Down syndrome, epilepsy, and chronic mental health illnesses such as bipolar disorder, obsessive-compulsive disorder, borderline personality disorder, anxiety, and depression.
At some point, we recognize that all brains are different so rather than thinking one way is good and another bad, let's understand the differences and how to work with them.
A SOCIAL MODEL
It's important to note that neurodiversity is not a medical model, but rather a social model that recognizes the diversity of human brains and the ways in which they function.
This means that neurodiversity is not about "fixing" or "curing" people, but rather about creating inclusive and accommodating environments that support the unique strengths and abilities of each individual.
Some of the key principles of neurodiversity include:
rather than viewing autism and other disorders as unfortunate errors or to be corrected, we should view these conditions as treasured parts of the genetic legacy of humanity,
we work to recognize the value and contributions of neurodivergent individuals to the development of culture, society and technology,
different individuals may have different experiences and needs,
there is no one-size-fits-all approach to supporting neurodiversity,
we have the opportunity to challenge negative stereotypes and discrimination, and
we can set a goal of creating inclusive and accessible environments for all.
How do I refer to someone on the spectrum?
Identity-first versus Person-first language
Since 1994, the psychology profession has used the term "Asperger's Syndrome" (AS) to describe a certain group of people with neurological differences that impact social interactions, how the world is experienced, and verbal and nonverbal communication.
In 2013, the diagnostic criteria changed and AS became part of a high-functioning autism (Autism Spectrum Disorder or ASD).
Our team of therapists and coaches generally use identity-first language rather than person-first language. To illustrate:
refers to our neurodiverse clients as Aspies, AS partner, or autistic partner.
PRO: suggests that autism is a core part of a person's identity (like being a Canadian) with all the strengths and weaknesses that come with that identity. Implies that you are OK with having autism as the core of who you are. For many, this is a clearer path to a more positive and realistic identity.
CON: some people don't like to be define this way.
Autism isn't something a person has, or a shell that a person is trapped inside. There's no normal child hidden behind the autism. Autism is a way of being. It is pervasive; it colors every experience, every sensation, perception, thought, emotion and encounter - every aspect of existence. It is not possible to separate the autism from the person – and if it were possible, the person you'd have left would not be the same person you started with.
refers to clients as the partner with Asperger's or the spouse on the spectrum.
PRO: you are not only your Asperger's symptoms. Autism is a modifier, not what defines you.
CON: the assumption usually is that one's autism is a burden that gets tacked onto a person (like a person who is saddled with a disease). This ignores the many strengths of being on the spectrum.
Although our team usually uses identity-first language, we understand the different reasons for both approaches and will accommodate whichever you are most comfortable with.
What's the difference between Neurodiverse and Neurodivergent?
Often, the word 'neurodiverse' is used interchangeably with 'neurodivergent'. However, if considered carefully, an individual person technically is not neurodiverse.
INDIVIDUAL = NEURODIVERGENT
The term 'diverse' means 'varied', so while a group of people with different neurotypes can be considered neurodiverse, an individual is either neurotypical or neurodivergent.
COUPLE = NEURODIVERSE
Since a couple is made up of two people, the term neurodiverse is a better fit.
A "disorder" sounds bad. Why use that term?
Although the psychology profession uses the term "Autism Spectrum Disorder (ASD)", we much prefer "Autism Spectrum DIFFERENCE".
When considering all the strengths and weaknesses, our clients are no more "disordered" than other people. In other words, there is no 'normal'; rather, there are different neurotypes, some more prevalent/common than others.